tag:blogger.com,1999:blog-7290900848703573088.post2431356284575607461..comments2023-05-20T04:55:14.351-07:00Comments on Princess TinyButt of the Ity Bity Tity Committee: SOMEONE YOU KNOW...angelahttp://www.blogger.com/profile/13457899003599997045noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7290900848703573088.post-86208210582434251722010-05-13T14:34:35.172-07:002010-05-13T14:34:35.172-07:00@ TJB - hey, hey! so good to hear from you! yes, t...@ TJB - hey, hey! so good to hear from you! yes, those of us struggling with LUPUS (i affectionately call us 'LUPIES'), all forms of it, can be sick ALL OF THE TIME. and yes, so many of us suffer in silence - due to either non/misdiagnosis, denial, lack of adequate/appropriate medical care, or awareness. i'm sure there are many other reasons too. one of the many "why's" for my starting the foundation are those very reasons. <br /><br />@MIZREPRESENT - hey girl! NO!! i didn't know that you are living with LUPUS!!?!?! how did i miss that?!? well you sure do make living with it look good!!! you just added another layer to my admiration of you! <br /><br />yes, i will keep you both posted on the progress with foundation, and i thank you so much for your interest. be well my friends :)angelahttps://www.blogger.com/profile/13457899003599997045noreply@blogger.comtag:blogger.com,1999:blog-7290900848703573088.post-18331290002228259742010-05-13T11:03:21.645-07:002010-05-13T11:03:21.645-07:00Hey lady, i think you know that i have lupus too! ...Hey lady, i think you know that i have lupus too! And the funny thing i went undiagnosed for years before my symptoms became more pronounced. Lately, i haven't had too many flareups, but that darn sun being out all the time, has caused my body to knot up and hurt. I am one of the lucky ones i haven't had or suffered with any organ failures, or anything too detrimental, so i feel blessed to just be here. Congratulations on your org. Once the site is up, let me know.Mizrepresenthttps://www.blogger.com/profile/02992754393960138393noreply@blogger.comtag:blogger.com,1999:blog-7290900848703573088.post-16955478424620712062010-05-12T19:45:54.347-07:002010-05-12T19:45:54.347-07:00Princess, haven't spent much of the Mother'...Princess, haven't spent much of the Mother's Day weekend with my sister who is living with Lupus, I can attest to the unpredictable nature of the disease. Many suffer in silence, since few people acknowledge their illness. I mean, really... can they always be sick.. all the time? The answer is yes... all the time. And I'm sure you can attest that the medicines are more debilitating than the illness. <br /><br />I want to know more about you non-profit and what I can do to help. Much luv, That Johnson BoyKEITH O JOHNSONhttps://www.blogger.com/profile/01650187166137259057noreply@blogger.com