the birth of happiness and joy - my child

to day is the day that god blessed me with my darling daughter, ladybug... lauren camille.

my heart fills just thinking about what to write to describe what i feel. feel for her today, and always. but there's this song by lauryn hill called "To Zion", where she talks about her son, zion, and goes through the feelings of her experience. in a way, her experience is mine too. and whenever i here this song, i think of my ladybug. actually, it's not that hear the song often, it's that i thnk of it often, because of how intensly i love my girl.

well, here are the word to the song, but i've made some changes, as those of you who know the song will be able to tell....

"TO LAUREN CAMILLE"......
Unsure of what the balance, held, I touched my belly overwhelmed by the meaning of it all.
Then an angel came one day, told me to kneel down and pray, for unto me a womanchild would be born.
Though the pregnancy was a crazy circumstance, I knew her life deserved a chance.
How beautiful if nothing more than to wait at Lauren's door. I've never been in love like this before.
Now let me pray to keep you from the perils of life that will surely come.
See life for you my Princess has just begun.
And I thank you for choosing me to come through unto life and be.
You are a beautiful reflection of His Grace.
You see, I know that a gift so great is only one that God could create, and I'm reminded of that every time I see your face....
That the joy of my world is in Lauren Camille. Now the joy my world is Lauren Camille.

my beautiful beautiful lauren camille - happy birthday .... mommy loves you.

ginving thanks thankfully

today is a day for giving thanks. and i am so very thankful on this day, and and every day that god blesses me with.

again, i'm not as eloquent as i used to be, as i would still like to be. and would really like to say something wonderfully moving, touching, thoughtful. so i'll just share this little prayer that i've been saying every since i was a little girl. i say it everyday with my family, and i share it lovingly with you...


lord, i thank you for this day
i thank you for your blessings, your grace, and your mercy
i thank you for keeping all those that i love and care about safe
and i ask that you keep them safe through the day and night
then wake us all in the morning - happy, healthy, safe, and of sound mind, body and spirit
so that we may continue to share your blessings.

I WISH YOU A HAPPY AND SAFE AND BLESSED THANKSGIVING

pride

ladybugs track club had their annual awards banquet and she was so excited to recieve a real trophy! she could barely stand it.

what was funny was that she was torn between acting like a 'big girl', trying to be cool, like it was all in a day's play. or to just be as thrilled as she actually was - lots of giggling.

i'll be back with pics all her medals and ribbons.

be well :)

blue

again, so sorry for being missing in action. i can't say that i've been busy. i can't say that i've been sick.

i've just been, well..... blue.

not depressed. just, blue. i am realizing that i have been slowly, slowly giving in to my diseases and situation. not necessarily in a conscious way. but yes, in a way, consciously. each day i would knowingly surrender. decide that i'm not going to be present in my life a little bit at a time... by not stretching today. i'm not going to read today. decide not to talk to clients today. not to get on the computer. not to answer the phone. not to cook. not to craft. to just not be me. not to fight anymore.

i'm tired. i'm tired of being sick. and i'm tired of this fight. i want a different fight. is that even possible? i mean, really. i realize that i've sort of been on pause - just waiting, in a way, for all of this to be finished. you know, like when you're watching a bad movie. or in a meeting you don't want to be in. or when you picked up the phone and realized it's not someone you really wanted to talk to at that moment. just waiting. waiting to be finished so i can move on. i've got things to do, places to go, people to see and be with. ya know?

while struggling with what to do to not be so blue, i see that i've even not blogged about all that i'm feeling for fear of alarming, being borish, or, heaven forbid... sounding all "woe is me-ish" and in need of some "there, there now...". which i probably do need now that i think about it, lol!
i was just shaking it all off, the blueness, and trying to kick tinybutt back into gear when i was at another doctors appointment last week. i got some not so great news, which i new was coming, but just didn't want to hear, or deal with. i just don't want to deal with this shit anymore. so, it just smacked the blue right back on me. and here i sit. feeling alone. and blue.

it's so hard, i feel, because i do feel alone. eventhough i know i'm not. i have a few close sister friends i could confide in. and a ton more acquaintences that always offer their ear. and i do appreciate that. yet that's so hard for me to do. i'm the one they come to for the "there, there's". i'm the one that makes it all clear and safe and ok for them. hell it's who i am and it's what i do.
you see, i am a professional certified life coach. have been for a very long while. and i love it. besides my family and friends, it really keeps me going because it helps me feel so useful and relevant. but. because i'm the 'go to' person, the one who (according to everyone else) has all the answers, or can at least help figure it out, find a way, always know's what to say and how to say it....it's so very hard for me to be vulnerable to someone else. that's really the main reason why i began blogging. so i could be annonymously vulnerable. because i do need to be able to.

but, there's nothing wrong with being vulnerable. and i want to be ok with being emotionally naked in my world. bare and honest. but how do i make others, those closest to me, feel ok with that. will they understand me. no. i've tried. they're scared. and that's ok. but where does that leave me in the mean time.

blue. feeling it, and then moving on.


be well :)

oh, the agony...!

no, no, no!! say it aint so!

i have sattelite television, direct tv to be exact, and have been perfectly happy with them for the last 6 years. not a problem. until this morning.

everyone who knows me knows that i really like oprah (i don't care what anybody says!), and now am in complete love with her 'oprah and friends' radio programs, which include all her friends - dr. oz, gail, jean chatzky, dr. robin smith, rodney and holly robinson-peete, marianne williamson, dr. maya angelou, rabbi shmuley, along with a few others. well, i really just 'love,love, love' the programs that are on during the time zone that i listen in 8am-2pm (jean, shmuley, gail, marianne, and dr. robin-i brake at 10 however to catch the hot mess at 'the view' which is the first 20-30minutes). and i sometimes try to schedule my appointments around them.

not today. not tomorrow. not ever. as long as i have direct tv.

i turned to the channel and ..... nothing. just blackness. whuh?!?! huh?!?!? i immediately called up the cable company to find out what they've done to my programs. it's a sad day today. for me, a sad day indeed.

well, until i shake off this stunning sense of loss and then figure out what the heck i'm gonna do about it... i'm off to go mourn now.

be well :)

rememberance

so many have given so much. let us not forget. we must not forget. or we are doomed to repeat.

i honor those who sacrafice, for us, for me.

thank you.

a small trip back

i've been really under the weather lately physically, and emotionally. so, since i've written about feeling this way before, and feeling the need to still write about it. i just thought i'd repost and earlier one. interesting how not that much has changed really.

i'm not on regular chemo treatments; i get them "PRN" (means as needed), only if i'm having a crisis, or the disease gets aggressive. actually, if i can go another 30 days my docs will declare me stable, but not in remission.

in the meantime, here's how i'm feeling:
~~~~~~~~~~~~~~~~~

shootin' blanks

"so i've probably filled you in on some of my health issues and health related what nots, and how i'm really trying to come to terms with just how sick i really am. it's hard. i don't want to believe that my body, and now (as of 10/06) my brain is failing me. one of the things that i'm dealing with is short term memory loss. at least that's the the doctors are calling it. short term memory loss(stml). short term. doesn't short term mean for a little while, temporary, will be over soon? well, i'm still waiting. this whole escalation of my diseases happened in october 2006. on my wedding anniversery no less. i keep hoping that i'll wake up tomorrow and it will be all over, at least the memory issue.

yes, it's gotten so much better since october. truly. BUT. i'm getting frustrated. for the most part, i can see that i've come a very long way, and am very thankful for the support and prayers i've recieved, and i know that it will take time. time. TIME.

right now i'm sick of that. sick and tired of hearing that, of telling myself that. of being patient. you see, i'm the one that's patient with everyone.... except with myself. i don't know how to be that for myself. how to give that to myself. i should know how to, right? i gave to everyone else. shouldn't it be easy? well, it's not. along with a whole list of other things i should be able to do for myself.

i 'm tired of not knowing if i've had this conversation already, asked that question before. i have to write everything down. more than twice most of the time. i was in the store the other day and i saw someone i think knew me, but didn't say anything to me, just sort of "acted" like we didn't know each other. but i really felt like we did. there was something in her eyes that gave it away. all i have is my gut feeling. i don't remember, but sometimes i just have a feeling. it's really difficult to do so many things now. things that everyone takes for granted. things that i use to just do. like multi tasking (impossible practically,lol!!), or remembering how to get somewhere that you go a thousand times. just watching a tv show is a major challenge. its hard to follow, especially trying to watch movies. its all i can do to keep up with my ladybugs childrens programming the sprout channel! (you know, barney...). like the other day dh and i were going to get lb registered in her summer gymnastic camp. i knew exactly where it was, could see it in my mind. but i could remember how to tell dh where to go, or if we were even heading the right way. hell, i knew where i was, but didn't really know where i was! do you understand? it's more than just having a brain fart. you see, i was always the go to person. i knew everything, and remembered even more. i had this close to photographic memory. reliable like the sun rising and setting. now?

i use to be very well spoken, articulate, and cogent. a pretty good, and very confident public speaker, if i must say so myself. now...?? well, let's just say that it's probably all you can do to understand me. yeah, i'm typing like all is well, but trust me! this is not how i really speak. my sentance structure and spelling is that of a kindergartener. when i talk it sounds as if i'm deaf, or from some exotic country, or speaking baby talk, depending on how i'm feeling. it's so hard now to get my point accross. to say what i really am meaning to say. in addition to stml i have a combination of broca's and wernicke's aphasia. broca's is when it takes great effort for one to talk and have problems with grammar and speak short telegraphic sentences, such as "get water". wernicke's is when it's easy to talk, but i use the wrong words, the wrong sounds, or make up words. Much of what some people say may sound like "nonsense". i go back and forth depending on what's going on - if i'm tired, in pain, having swelling in the language center of the brain (vasculitis), or had a siezure.

everytime i look at dh or my ladybug, i get scared, angry, frustrated. it's also very funny. lb will say "ok momy, i'm going to have another cup of pudding because you're going to forget that i already had one". how can i stay angry, and frustrated for long? lol! i've since had to pull a 'mommy' on her and i pretend that my memory is just fine. i let her see me as i am except that. i do not want to put that on her. for some reason i feel like she can handle my physical disabilities, heck, she thinks it's fun at times (she gets to ride in my wheelchair with me sometimes, or play with my quite fancy shmacy cane!), but worry about the memory issues on her. she asked me one day if i was able to remember to take care of her, get her milk, cheerios, etc. the look of mixed genuine concern and fear and sadness on her face nearly broke me. my god i love her. oh, and the thought of my dh. i'm watching him now watching me struggle to type this. heartbreaking, really.

how do i describe to you what its like? i'm struggling with that. can you imagine looking at a picture of you and some loved ones, and having absolutely no memery, or even a feeling of it? nothing. just blank. that's it. just blank. i think that's the best i can do. it's blank. blankness. lots of it too. all running together.anyway. i'm angry and frustrated and scared right now. very. i'm shootin' blanks. there. i do feel better now. "

~~~~~~~~~~~

and i do feel better now. thanks for being here.


be well, be strong :)